SUE Bateman’s life changed dramatically a few years ago when she was diagnosed with Motor Neurone Disease (MND).
Sue is bravely living with MND and the constant challenges that it delivers. She is focused on raising money for research and raising awareness for others who don’t receive help due to their age at diagnosis.
MND refers to a group of rare neurodegenerative disorders that affect motor neurons, the nerve cells responsible for controlling voluntary muscles.
“I am moving through life one day at a time. Hoping for more time to spend with my loved ones,” Sue said.
“It is very difficult. You never know what function you’re going to lose next. It might be the loss of being able to dress, shower or hold cutlery to eat.
“I am lucky in that through NDIS I have help. I’d like to raise awareness for those who don’t. Unfortunately, the NDIS doesn’t cover people diagnosed with a disability aged 65 and over.”
Older Australians with MND must rely on other disability support and services.
Many of Sue’s friends and family will join her on July 27 in the Walk to Defeat MND Penrith at the Sydney International Regatta Centre.
“You can amplify our impact by donating. Your contribution will be a virtual stride alongside us, fuelling Sue’s resilience in her courageous battle. Let’s rally together with a generous donation!” said friends Jenny and Jane.
To register, go to: www.walktodefeatmnd.org.au/penrith25
Walk to Defeat MND Penrith will help raise funds to assist the not-for-profit organisation MND NSW to provide support rograms, information, and assistive equipment to those facing motor neurone disease in the Western Sydney region. The event also aims to bring the local community together for an enjoyable day out, for all ages and abilities.
“By Walking together, we send a powerful message of support to those facing MND, reminding them they are not alone in their fight,” said Kym Nielsen, Fundraising Manager for MND NSW.
Sue said there are over 500 people in NSW living with MND, with many requiring high levels of support and assistance.
“My goal is to raise funds to help MND NSW provide the best possible support for people living with MND and their families – including assistive equipment, support groups, education about MND and more.
“But I need your help. Please sponsor my walk to help change lives.
“To support me, click the ‘DONATE NOW’ button to make a donation and together we can help the people and families experiencing this devastating disease.
“Thank you so much for your support.”
Walk to Defeat MND – Sue Bateman – https://shorturl.at/5ZZOO
